Bai JianFeng: The government has the ability to bear the treatment and cure of the hemophilia infant

Bai JianFeng: The government has the ability to bear the treatment and cure of the hemophilia infant
Bai JianFeng: The government has the ability to bear the treatment and cure of the hemophilia infant
Www.people.com.cn 7 Cable of the 29th of moon (reporter Jing graceful Fu Liu sets up the wave) On the 28th, managing Deputy Chairman Li BenGong, Qian ZhongMin, director of China Charity Federation project department, Bai JianFeng, full senior reporter of People's Daily, of China Charity Federation act as a guest in www.people.com.cn, with " difficult problem how to analyse and explain the hemophilia infant to succour " Carry on interview for the theme. White sword peak is pointed out in interview: "Per person G D P of our country has already exceeded 3000 dollars now, at such an economic level, the government totally has the ability to bear the treatment and cure of most rare disease patients. First, can receive the popular feelings, promote the image of the government, second, can establish image and reputation of the government in the world. I think this method should be a strategic action. " "Hemophilia is a kind of rare disease, there is very little ill number of people. Though there is little number of people, can't ignore a few people's rights and interests. " White sword peak thinks, the United Nations classifies health right as a basic human rights. That is to say, one is no matter poor or rich, enjoy equal health right, this is a bottom line of fair, justice which a government should keep too. As to a few people, we should well safeguard a few people's rights and interests by the look of public opinion, because actually everybody probably becomes minority in a certain field, if you ignore the rights and interests of the person of this colony, probably your rights and interests will be ignored one day. As to the net friend what reflect " succours the respect at serious disease and rare disease, the government succours the coverage rate non- widely, it is higher to succour the threshold, and the charitable union succours ability relatively weak, the range is narrower " Question,there are common to explain because serious disease is different from rare disease and common disease, frequently-occurring disease in Deputy Chairman Li copy on managing China Charity Federation, the medical level expected very much on one hand, on the other hand require the huge medical funds guarantee, this is a very great difficult problem. In times when economy is extremely undeveloped, national medical supportability is still only in common disease, frequently-occurring disease. From the viewpoint of charitable union, seldom pay close attention to common disease now, and the succour project implemented now pays close attention to serious disease and rare disease difficult to cure, such as lung cancer, hepatocarcinoma, leukemia, hemophilia. This itself is progressive manifestation, but progress is still in primary stage. "The ability of the charitable union is deciding to the thing of sum of money definitely available according to raising to the society, believe with the constant development of national economy, the society donates the increasing of ability, the ability of the charitable union will be strengthened progressively too, try hard to supplement the government and cover the system the unattainable corner. " Li BenGong says. Background introduction Hemophilia (h e m o p h i l i a) It is bleeding disease of a kind of hereditary blood coagulation function obstacle. It is congenital in the patient's blood that the pathogenic factor is to lack a certain factor, divided into three kinds of types on the basis of the ones that lack the factor: Hemophilia first (lack the blood coagulation factor, also called hemophilia A) , hemophilia second (lack the blood coagulation factor, also called hemophilia B) With hemophilia third ' Lack the blood coagulation factor ,Comparatively common with hemophilia first, account for 85. The morbidity of hemophilia is 5 - 1 0 / 1 0 Wan, in the world about 40 ill people Wan. The ill rate of hemophilia of our country is 2. 7 3 / 1 0 Wan, estimate number of the infected about 8-10 Wan at present. The clinical characteristic of this kind of disease is the inclination of long-time bleeding after damaging slightly all the life, most patient joints bleed repeatedly, cause the lifetime disability, the serious one jeopardizes the life. Because of the reason of all respects such as economy, the prevention and cure of hemophilia of our country has a long way to go compared with developed country, the incidence of joint deformity,etc. is very high, influence the patient's life quality and even life-span seriously, cause very large pressure to society and family. In order to help the hemophilia children of the financial difficulties family to receive treatment, Bayer Company will set up " China Charity Federation visits department's strange hemophilia aid projects of children " with China Charity Federation together in June of 2009 ,Launch the large-scale medical treatment which succours hemophilia children in the whole country and succour the activity charitably. This project aims at undertaking to visit department's strange treatment mode with the medical insurance together through China Charity Federation, severe hemophilia children are visited department's strange treatment in years old for the help 2-18, reduce the emergence that the joint damaged, improve hemophilia children's life quality.


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